What is Huntington’s Disease?

Huntington’s Disease (HD) is a progressive brain disorder caused by a defective gene. This disease affects the central nervous system, leading to deterioration in a person's physical, cognitive, and emotional abilities. Typically manifesting in adulthood, symptoms include uncontrolled movements, cognitive decline, and emotional disturbances.

In Australia, HD is a relatively rare condition but has a significant impact on both the individuals diagnosed and their families due to its hereditary nature and the lack of a cure. Management strategies focus on symptom alleviation and life quality improvement through medications, therapy, and supportive aged care, providing a comprehensive approach to care that includes assistance with daily activities and tailored support services.

Huntington's Disease Home Care Assistance

Who is at a Higher Risk of Developing Huntington's Disease?

It is crucial to understand that Huntington's Disease (HD) is an inherited condition caused by a faulty gene. This genetic aspect means that individuals with a parent who carries the HD gene are at a 50% risk of inheriting the condition themselves. There is no distinction in risk based on gender or ethnicity, making the primary factor the genetic link to a parent with HD.

Risk FactorDescription
Genetic Inheritance:Individuals with one parent who carries the HD gene have a 50% chance of inheriting the disease.
Age:Symptoms usually appear in adulthood, but the condition is present from birth. Juvenile cases are rare.

It's important for individuals with a family history of HD to consider genetic testing to determine their risk. Genetic counselling is recommended to help at-risk individuals understand the implications of testing and the disease.

Symptoms of Huntington's Disease

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Huntington's Disease can be categorised into three main types: physical, cognitive, and emotional. Each of these symptoms varies in severity and progression among individuals. It's important to note that the manifestation of symptoms typically begins in adulthood, with the condition gradually worsening over time.

Physical Symptoms

  • Chorea: Involuntary, jerky movements of the arms and legs.
  • Motor Skills Decline: Difficulty with coordination and balance, leading to challenges in walking and performing daily activities.
  • Speech and Swallowing Issues: Difficulty in speech articulation and swallowing, which may lead to weight loss and nutrition issues.

Cognitive Symptoms

  • Memory Loss: Particularly affecting short-term memory.
  • Concentration Difficulties: Challenges in focusing, planning, and executing tasks.
  • Learning New Information: Difficulty in absorbing and retaining new information.

Emotional Symptoms

  • Depression: A significant number of individuals with Huntington's Disease experience depression.
  • Mood Swings and Irritability: Fluctuations in mood and increased irritability.
  • Personality Changes: Changes in personality, including apathy and aggression.

These symptoms collectively impact an individual's daily life, requiring a comprehensive approach to management and support.

Are you or your loved ones experiencing any symptoms of Huntington’s disease? Reach out to us so we can assist you in finding the help you need.

Talk To Us

Huntington’s Disease

Our skilled carers are ready to assist when daily tasks become overwhelming.

Our professional and qualified carers will be ready to help when your care needs and everyday activities become too difficult to manage alone.

Our team at Beacon Support has decades of experience caring for a wide range of neurological and degenerative conditions, including Huntington’s Disease. Beacon Support offers you a wide range of care options to support you while living with Huntington’s Disease, including:

  • Help with mobility
  • Nutrition support and feeding assistance
  • Administering of medication
  • Bowel and bladder function support
  • Communication devices
  • Emotional support to you and your loved ones
  • Coordination with other services such as occupational therapy, speech therapy and physiotherapy
  • Personal care support as required
  • 24 hour support if needed.

Managing Huntington’s Disease

We will work with you to create a care and support program tailored specifically to your individual needs and the stage of the condition.

We know first hand that Huntington’s Disease affects each person differently and our breadth of experience and knowledge means we are well-equipped to support you. Among the common symptoms of Huntington’s Disease that our home care can help manage are:

  • Difficulty remembering things
  • Lack of coordination and clumsiness
  • Trouble moving or walking
  • Trouble breathing, swallowing, speaking
  • Involuntary jerking movements
  • Mood changes.

Whether you are experiencing the above or other symptoms, we can help you with tailored Huntington’s Disease Australia support and care, as well as coordination with other services where required.

Huntington’s Disease Support
You Can Trust

At Beacon Support, we pride ourselves on delivering highly skilled care and Huntington’s Disease support you can trust. We are committed to ensuring you feel safe and supported with expert care and understanding. Regardless of what happens, we know what to do and will approach every aspect of your care professionally and with empathy.

Your care will be delivered under the supervision of a Registered Nurse ensuring you receive the highest quality care. We are also a registered NDIS provider.

Call us today at 1300 435 782 or contact us via our online form for a consultation to see how we can help you live with Huntington’s Disease.

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